Publications
Review our reports, journal articles, conference poster presentations and other materials that have been generated by our research.
Systematic review of interventions for reducing stigma experienced by children with disabilities and their families
We aimed to identify and assess the evidence for interventions to reduce stigma experienced by children with disabilities and their families in low- and middle-income settings.
The majority (65%) of interventions targeted enacted stigma (negative attitudes) and the most common intervention approach was education/training (63%). Over half (54%) of interventions were delivered at the organisational /institutional level, and only four studies targeted more than one social level. The most common disability targeted was epilepsy (50%) followed by intellectual impairment (20%). The majority of studies (n = 18/20, 90%) found a reduction in a component of stigma; however, most (90%) studies had a high risk of bias.
Surviving and Thriving Early Intervention for Neonatal Survivors With Developmental Disability in Uganda
Global attention on early child development, inclusive of those with disability, has the potential to translate into improved action for the millions of children with developmental disability living in low- and middle income countries. Nurturing care is crucial for all children, arguably even more so for children with developmental disability. A high proportion of survivors of neonatal conditions such as prematurity and neonatal encephalopathy are affected by early child developmental disability. The first thousand days of life is a critical period for neuroplasticity and an important window of opportunity for interventions, which maximize developmental potential and other outcomes. Since 2010, our group has been examining predictors, outcomes, and experiences of neonatal encephalopathy in Uganda.
Engagement of Fathers in Parent Group Interventions for Children with Congenital Zika Syndrome: A Qualitative Study
We aimed to explore the engagement of fathers in a community-based group intervention (Juntos) for children with congenital Zika syndrome (CZS) and their caregivers in Brazil. Six Juntos groups were facilitated from August 2017 to May 2018. We conducted a qualitative study to evaluate the feasibility and acceptability of the intervention for fathers of children with CZS.
Development and assessment of the feasibility of a Zika family support programme: a study protocol
Four fifths of the estimated 150 million children with disability in the world live in resource poor settings where the role of the family is crucial in ensuring that these children survive and thrive.
Developing an early intervention programme for children at high-risk of neurodevelopmental impairment in Uganda
Evaluating the impact of a community-based parent training programme for children with cerebral palsy in Ghana
This study aims to develop, pilot and assess the feasibility and scalability of a community-based Family Support Programme for caregivers of children affected by zika. The programme is adapted from the Getting to Know Cerebral Palsy (GTKCP) programme for the context of congenital zika syndrome in Brazil.
Reflections on Health Promotion and Disability in Low and Middle-Income Countries: Case Study of Parent-Support Programmes for Children with Congenital Zika Syndrome
Improving nutritional status of children with Cerebral palsy: a qualitative study of caregiver experiences and community-based training in Ghana
Understanding the Lives of Caregivers of Children with Cerebral Palsy in Rural Bangladesh: Use of Mixed Methods
A support programme for caregivers of children with disabilities in Ghana: Understanding the impact on the wellbeing of caregivers
Four fifths of the estimated 150 million children with disability in the world live in resource poor settings where the role of the family is crucial in ensuring that these children survive and thrive.
Systematic review of interventions for reducing stigma experienced by children with disabilities and their families
We aimed to identify and assess the evidence for interventions to reduce stigma experienced by children with disabilities and their families in low- and middle-income settings.
The majority (65%) of interventions targeted enacted stigma (negative attitudes) and the most common intervention approach was education/training (63%). Over half (54%) of interventions were delivered at the organisational /institutional level, and only four studies targeted more than one social level. The most common disability targeted was epilepsy (50%) followed by intellectual impairment (20%). The majority of studies (n = 18/20, 90%) found a reduction in a component of stigma; however, most (90%) studies had a high risk of bias.
Surviving and Thriving Early Intervention for Neonatal Survivors With Developmental Disability in Uganda
Global attention on early child development, inclusive of those with disability, has the potential to translate into improved action for the millions of children with developmental disability living in low- and middle income countries. Nurturing care is crucial for all children, arguably even more so for children with developmental disability. A high proportion of survivors of neonatal conditions such as prematurity and neonatal encephalopathy are affected by early child developmental disability. The first thousand days of life is a critical period for neuroplasticity and an important window of opportunity for interventions, which maximize developmental potential and other outcomes. Since 2010, our group has been examining predictors, outcomes, and experiences of neonatal encephalopathy in Uganda.
Engagement of Fathers in Parent Group Interventions for Children with Congenital Zika Syndrome: A Qualitative Study
We aimed to explore the engagement of fathers in a community-based group intervention (Juntos) for children with congenital Zika syndrome (CZS) and their caregivers in Brazil. Six Juntos groups were facilitated from August 2017 to May 2018. We conducted a qualitative study to evaluate the feasibility and acceptability of the intervention for fathers of children with CZS.
Development and assessment of the feasibility of a Zika family support programme: a study protocol
Four fifths of the estimated 150 million children with disability in the world live in resource poor settings where the role of the family is crucial in ensuring that these children survive and thrive.
Developing an early intervention programme for children at high-risk of neurodevelopmental impairment in Uganda
Evaluating the impact of a community-based parent training programme for children with cerebral palsy in Ghana
This study aims to develop, pilot and assess the feasibility and scalability of a community-based Family Support Programme for caregivers of children affected by zika. The programme is adapted from the Getting to Know Cerebral Palsy (GTKCP) programme for the context of congenital zika syndrome in Brazil.
Reflections on Health Promotion and Disability in Low and Middle-Income Countries: Case Study of Parent-Support Programmes for Children with Congenital Zika Syndrome
Improving nutritional status of children with Cerebral palsy: a qualitative study of caregiver experiences and community-based training in Ghana
Understanding the Lives of Caregivers of Children with Cerebral Palsy in Rural Bangladesh: Use of Mixed Methods
A support programme for caregivers of children with disabilities in Ghana: Understanding the impact on the wellbeing of caregivers
Four fifths of the estimated 150 million children with disability in the world live in resource poor settings where the role of the family is crucial in ensuring that these children survive and thrive.