Publications Archives

Randomised controlled pilot feasibility trial of an early intervention programme for young infants with neurodevelopmental impairment in Uganda: a study protocol

Aug 11, 2021

Early intervention programmes (EIPs) for infants with neurodevelopmental impairment have been poorly studied especially in low-income settings. We aim to evaluate the feasibility and acceptability of a group participatory EIP, the ‘ABAaNA EIP’, for young...

Early Detection and Intervention for Young Children With Early Developmental Disabilities in Western Uganda: a Mixed-methods Evaluation

Aug 11, 2021

A programme of early detection and intervention for children with early developmental disabilities and their families was feasible and acceptable in a rural community-based Ugandan setting. Health care worker training positively impacted knowledge, confidence,...

Illuminating the empowerment journey of caregivers of children with disabilities: Understanding lessons learnt from Ghana

Aug 4, 2021

Empowerment is an increasingly popular goal, considered core to a transformative agenda for children with disabilities and their families. However, it can still be a poorly understood concept in practice. This article is an empirical analysis of the ‘empowerment...

Parent support groups for families and children with congenital zika syndrome in Colombia

Aug 4, 2021

We aimed to evaluate the feasibility of a 10-week support group, ‘Juntos’, as a community-based intervention for parents of children with congenital Zika syndrome (CZS) in Colombia. We found that acceptability and demand for the intervention were high. ‘Juntos’ was...

A Support Program for Families Impacted by Congenital Zika Syndrome

Aug 4, 2021

A community-based family group program for caregivers of children with congenital Zika syndrome (CZS) was developed based on an existing program for families of children with cerebral palsy and pilot tested in Brazil. Program managers developing group initiatives...

Mothers as facilitators for a parent group intervention

Aug 4, 2021

Families play an important role in their care of children with developmental disabilities, yet their knowledge, experience and skills are rarely harnessed in existing interventions to best support these families. This study explores the use of mothers as facilitators...